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Author Topic: this board is for mothers and carers to connect  (Read 192 times)
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Gavin - Admin
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hi all I suffer from severe haemophilia A


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« on: February 16, 2010, 10:31:18 AM »

this board is for mothers and carers to connect
enjoy
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hev
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« Reply #1 on: March 23, 2010, 09:36:41 PM »

hi all im mummy to 2 severe haemo' a boys steven 10 and jonny 8...our centre is st james in leeds and we are based in northyorkshire would love to hear from from other mums/carers of haemo's xx 
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sandie1201
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« Reply #2 on: May 10, 2010, 08:19:15 PM »

hey there....im a mummy to Taylor 4, his a severe haemophiliac.....would love to get some advice from you...gosh car'nt belive your boys are 10 and 8.....im tired and my boys only 4  lol seriously i hope you dont mind me asking how do you deal with it sometimes. Ive had no help what so ever with Tay. Its really depressing me at the mo...cuz im fighting to get benefits for him e.g blue badge, etc its just a constant war with them and as for Taylor its like all my other friends who have got kids dont understand so there's no one really i can talk to.... so thankfully i found this cuz kinda need all te help i an get.
« Last Edit: May 10, 2010, 08:22:45 PM by sandie1201 » Logged
Gavin - Admin
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hi all I suffer from severe haemophilia A


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« Reply #3 on: May 10, 2010, 08:35:05 PM »

hi sandie
have you applied for dla for taylor?

also what else have you tried to claim? if anything

as for the blue badge you can only get that if you recieve high rate mobility

im sure if i cant help hev would not mind giving you some advice
you can personal message hev from here
chin up sandie help is at hand now
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« Reply #4 on: May 13, 2010, 04:02:02 PM »

Hi sandie....anything you wanna know just ask......am kinda a pro at this now lol being doing it for 10 yrs with my boys and donkeys yrs with my dad xx
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